Millions of adults in the United States live with various neurological conditions, including epilepsy, Alzheimer’s disease and other dementias, cerebrovascular disease including stroke and headache, Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), Parkinson’s Disease, infections, brain tumors, and acquired (ABI) or traumatic brain injury (TBI).
Many, depending on the severity or progression of their condition, rely on family members, friends, or other volunteers to help them throughout the day. Respite for individuals with neurological conditions may be difficult for family caregivers to find and to access due to limited options and funding sources.
The Respite for Individuals with Neurological Conditions fact sheet provides an overview of the population of adults with neurological conditions, and discusses considerations that families, respite providers, other program administrators and state Lifespan Respite grantees should take into account in relation to accessing or providing respite to family caregivers of these individuals. This fact sheet is intended also to provide information that will encourage State Lifespan Respite grantees and others to stimulate and provide resources to increase the capacity and affordability of respite services for this population across the lifespan.
The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums.