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Statewide and Nationwide

Disability Rights and Advocacy

Groups and organizations that protect the rights of people who have physical, mental, developmental or learning disabilities.

Individuals with Disabiity Education Act (IDEA)

Virginia Department of Education - Division of Special Education
101 North 14th Street, Richmond, VA, 23219
Main: (804) 786-8079 Toll Free: (800) 292-3820 Fax: (804) 786-8520

Transition Coordinator

Virginia Department of Education - Division of Special Education
101 N. 14th Street, Richmond, VA, 23218
Main: (800) 292-3820

Fibromyalgia and Chronic Fatigue Care

Programs for individuals with fibromyalgia, a common condition characterized by widespread pain in joints, muscles, tendons, and other soft tissues. May be accompanied by chronic fatigue syndrome.

Education & Advocacy

Central Virginia Chronic Fatigue Syndrome & Fibromyalgia Assn
P.O. Box 5733, Charlottesville, VA, 22905
Main: (434) 984-3419

Grantmaking Organization, Parkinson's Disease

An organization whose primary activity is granting funds to other organizations to achieve their mission. Foundation is often included in the organization’s name. Organizations solicit contributions, endowments and other financial support from public and private sources which are used directly by the organization to provide services for individuals living with Parkinson’s Disease or their caregivers. Also included are governmental and quasi-governmental entities that manage the allocation of public monies.

Grant-making Organization, Parkinson's Disease

American Brain Foundation
201 Chicago Avenue, Minneapolis, MN, 55415
Main: (866) 770-7570 Toll Free: (866) 770-7570

Grant-making Organization, Parkinson's Disease

Davis Phinney Foundation for Parkinson's
357 S McCaslin Boulevard, Suite 105, Louisville, CO, 80027
Main: (303) 733-3340 Toll Free: (866) 358-0285 Fax: (303) 733-3350

Grant Making Organization, Parkinson's Disease

Michael J. Fox Foundation
Main: (800) 708-7644

Grant-Making Organization for Parkinson's Disease

Parkinson Alliance
4454 Route 27, Fl. 2, Kingston, NJ, 08528
Main: (609) 688-0870 Toll Free: (800) 579-8440 Fax: (609) 688-0875

Guardianship Services

Organizations or individuals appointed to act as legal guardians or conservators of people unable to manage decision-making for their care and well being.

Advocacy | Guardianship

Virginia Guardianship Association (VGA)
PO Box 6357, Newport News, VA, 23606
Main: (804) 261-4046

Health Condition and Care Advocacy

Organizations that are dedicated to protecting and improving the quality and affordability of health and long term care for all individuals and advocating for changes in the health care system that will achieve these goals; or which advocate more broadly for legislation and other measures that have a positive impact on public health.

Five Wishes and Advance Directives

Aging With Dignity
3050 Highland Oaks Terrace, Suite 1, Tallahassee, FL, 32301-3841
Main: (888) 594-7437

ALS Advocacy, Administration

ALS Association, DC/MD/VA Chapter
30 West Gude Drive, Suite 150, Rockville, MD, 20850
Main: (301) 978-9855 Toll Free: (866) 348-3257

Advocacy, Heart Disease

American Heart Association
7272 Greenville Avenue, Dallas, TX, 75231
Main: (800) 242-8721 Toll Free: (800) 242-8721

Advocacy for Lung Health Services

American Lung Association of Virginia
9702 Gayton Road # 110, Richmond, VA, 23238
Main: (804) 955-4910 Toll Free: (800) 586-4872 Fax: (804) 267-5634

Advocates for Health Care System

American Medical Association
515 North State Street, Chicago, IL, 60610
Main: (800) 262-3211

Sexual Health Advocacy

American Sexual Health Association
PO Box 13827, Research Triangle Park, NC, 27709
Main: (800) 342-2437 Toll Free: (800) 243-7889 Fax: (919) 361-8425

Information, Sickle Cell Anemia

American Sickle Cell Anemia Association
10900 Carnegie Avenue, DD Building at the Cleveland Clinic, Suite DD1-201, Cleveland, OH, 44106
Main: (216) 229-8600 Fax: (216) 229-4500

Limb Loss or Difference Advocacy and Information

Amputee Coalition
601 Pennsylvania Avenue NW, Washington, DC, 20004
Main: (888) 267-5669 Toll Free: (888) 267-5669 Fax: (865) 525-7917

Progressive Supranuclear Palsy Advocacy and Information

Cure PSP
1216 Broadway, 2nd Floor, New York, NY, 10001
Main: (347) 294-2873 Toll Free: (800) 457-4777

Defense Centers of Excellence (DCoE) Speakers Bureau

Defense Centers of Excellence (DCoE)
1335 East West Highway, 9th Floor, Silver Spring, MD, 20910
Main: (301) 295-3257 Toll Free: (866) 966-1020

Food Allergy Information and Resources

Food Allergy Research and Education (FARE)
7925 Jones Branch Drive, Suite 1100, McLean, VA, 22102
Main: (703) 691-3179 Toll Free: (800) 929-4040 Fax: (703) 691-2713

Advocacy for Amputees

Jordan Thomas Foundation
9005 Overlook Boulevard, Brentwood, TN, 37027
Main: (615) 455-5505

Advocacy for Blood Cancer Research, Richmond

Leukemia and Lymphoma Society, Virginia Chapter
5540 Falmouth Street, Suite 101, Richmond, VA, 23230
Main: (804) 673-5690 Toll Free: (800) 766-0797 Fax: (804) 627-0406

Leukemia Advocacy, Northern Virginia

Leukemia and Lymphoma Society, Virginia Chapter
5540 Falmouth Street, Suite 101, Richmond, VA, 23230
Main: (804) 673-5690 Toll Free: (800) 766-0797 Fax: (703) 399-2901

Advocacy for Amputees

Mending Limbs
214 Watson View Drive, Franklin, TN, 37067
Main: (615) 390-3450

Home Care Advocacy

National Association For Home Care
228 7th Street SE, Washington, DC, 20003
Main: (202) 547-7424 Fax: (202) 547-3540

Lyme Disease and Tick Borne Illnesses Information

National Capital Lyme Disease Association
P O Box 8211, McLean, VA, 22106
Main: (703) 821-8833

Social Security and Medicare Advocacy

National Committee to Preserve Social Security and Medicare
10 G Street, NE, Suite 600, Washington, DC, 20004
Main: (202) 216-0420 Toll Free: (800) 966-1935 Fax: (202) 216-0446

Nursing Home Care Advocacy

National Consumer Voice for Quality Long Term Care
1001 Connecticut Avenue NW, Suite 425, Washington, DC, 20036
Main: (202) 332-2275 Toll Free: (866) 230-9789 Fax: (202) 332-2949

Multiple Sclerosis Advocacy

National Multiple Sclerosis Society, Greater DC and Maryland
One M Street NW, Suite 510 North, Washington, DC, 20003
Main: (202) 296-5363 Toll Free: (800) 344-4867 Fax: (202) 296-3425

Multiple Sclerosis Advocacy and Public Awareness, Statewide

National Multiple Sclerosis Society, Virginia, West Virginia
4200 Innslake Drive, Suite 301, Glen Allen, VA, 23060
Main: (800) 344-4867 Toll Free: (800) 344-4867

Rare Disease Health Information and Resource Guide

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue, P O Box 1968, Danbury, CT, 06813
Main: (203) 744-0100 Toll Free: (800) 999-6673 Fax: (203) 798-2291