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Statewide and Nationwide

Ombudsman

A state agency that investigates complaints made by or on behalf of persons in nursing facilities, continuing care retirement communities and assisted living facilities and for persons receiving community-based services, such as home health and personal care.

Long Term Care Problem Assistance

National Long Term Care Ombudsman Resource Center
1828 L Street, NW, Suite 801, Washington, DC, 20036
Main: (202) 332-2275 Fax: (202) 332-2949

Long-Term Care Ombudsman, Statewide

Virginia Office of State Long-Term Care Ombudsman Program
Dept. for Aging and Rehabilitative Services,, 8004 Franklin Farms Drive, Henrico, VA, 23229
Main: (804) 662-7000 Toll Free: (800) 552-5019

Organ Donation

Programs for donation of organs and tissues to save another person's life or improve their functioning.

Organ Transplant Education | Advocacy

Transplant Recipients International Organization
2100 M Street NW # 170-353, Washington, DC, 20037
Main: (202) 293-0980 Toll Free: (800) 874-6386

Parenting Support, Disability

Emotional support for parents or caregivers of individuals with a disability.

Advocacy, Training, Information and Referral for Children with Disabilities

Parent Educational Advocacy Training Center (PEATC)
403 Holiday Court, Suite 104, Warrenton, VA, 20186
Main: (703) 923-0010 Toll Free: (800) 869-6782

Parkinson's Disease

A movement disorder that is both chronic and progressive that occurs when cells in the brain malfunction.

Advocacy, Parkinson's Disease

Parkinson's Foundation
200 SE 1st Street, Suite 800, Miami, FL, 33131
Main: (305) 243-6666 Toll Free: (800) 327-4545 Fax: (305) 243-6073

Patient Support, Alzheimer's Disease

An organization whose primary mission relates to Alzheimer’s Disease patient advocacy, education, or direct support programs to address patient specific needs. These organizations may peripherally participate in other activities like legislative advocacy, but patient support is their focus. Programs that help individuals navigate through the maze of the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution.

Patient Support, Alzheimer's Disease

Alzheimer's Association
225 North Michigan Avenue, Floor 17, Chicago, IL, 60601
Main: (703) 359-4440 Toll Free: (800) 272-3900 Fax: (703) 359-4441

Patient Support, Alzheimer's Disease

Alzheimer's Store
450 Oak Tree Avenue, South Plainfield, NJ, 07080
Main: (800) 752-3238

Patient Support for Alzheimer's

Music & Memory
160 First Street, Mineola, NY, 11501

Patient Support, Amyotrophic Lateral Sclerosis (ALS)

An organization whose primary mission relates to Amyotrophic Lateral Sclerosis (ALS) patient advocacy, education, or direct support programs to address patient specific needs. These organizations may peripherally participate in other activities like legislative advocacy, but patient support is their focus. Programs that help individuals navigate through the maze of the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution.

Patient Support Chronic Diseases

Accessia Health
P.O. Box 5930, Midlothian, VA, 23112
Main: (800) 366-7741 Fax: (804) 744-9388

ALS Insurance Navigator, Amyotrophic Lateral Sclerosis (ALS)

ALS Association
1300 Wilson Boulevard, Suite 600, Arlington, VA, 22209
Main: (800) 782-4747

Patient Support, Amyotrophic Lateral Sclerosis (ALS)

ALS Association
1300 Wilson Boulevard, Suite 600, Arlington, VA, 22209
Main: (800) 782-4747

Patient Support, Amyotrophic Lateral Sclerosis

Canine Partners for Life
334 Faggs Manor Road, Cochranville, PA, 19330
Main: (610) 869-4902 Fax: (610) 869-9785

Patient Support for ALS

HealthWell Foundation
20440 Century Boulevard, Germantown, MD, 20874
Main: (800) 675-8416 Fax: (800) 282-7692

Patient Support, Huntington's Disease

An organization whose primary mission relates to Huntington’s Disease patient advocacy, education, or direct support programs to address patient specific needs. These organizations may peripherally participate in other activities like legislative advocacy, but patient support is their focus. Programs that help individuals navigate through the maze of the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution.

Patient Support for Huntington's Disease

Huntington's Disease Society of America, Southeast Virginia Affliliate
Main: (212) 242-1968 Toll Free: (800) 345-4372

Patient Support for Huntington's

Huntington's Disease Society of America, Wash Metro
505 Eighth Avenue, Suite 902, New York, NY, 10018
Main: (212) 242-1968 Toll Free: (800) 345-4372

Patient Support, Multiple Sclerosis (MS)

An organization whose primary mission relates to Multiple Sclerosis (MS) patient advocacy, education, or direct support programs to address patient specific needs. These organizations may peripherally participate in other activities like legislative advocacy, but patient support is their focus. Programs that help individuals navigate through the maze of the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution.

Patient Support, Multiple Sclerosis

Can Do Multiple Sclerosis
100 W. Beaver Creek Blvd, Suite 200, Avon, CO, 81620
Main: (970) 926-1290 Toll Free: (800) 367-3101 Fax: (970) 926-1295

Patient Support, Multiple Sclerosis

Canine Partners for Life
334 Faggs Manor Road, Cochranville, PA, 19330
Main: (610) 869-4902 Fax: (610) 869-9785

Patient Support, Multiple Sclerosis

Freedom Service Dogs of America
7193 S. Dillon Court, Englewood, CO, 80112
Main: (303) 922-6231

Patient Support

Multiple Sclerosis Association of America
375 Kings Highway North, Cherry Hill, NJ, 08034
Main: (800) 532-7667 Fax: (856) 661-9797

Patient Support

Multiple Sclerosis Foundation
6520 North Andrews Ave, Fort Lauderdale, FL, 33309
Main: (954) 776-6805 Toll Free: (888) 673-6287 Fax: (954) 351-0630

Patient Support for MS

National Multiple Sclerosis Society
Main: (212) 463-7787 Toll Free: (800) 344-4867

Patient Support for Multiple Sclerosis, Statewide

National Multiple Sclerosis Society, Virginia, West Virginia
4200 Innslake Drive, Suite 301, Glen Allen, VA, 23060
Main: (800) 344-4867 Toll Free: (800) 344-4867

Patient Support for Multiple Sclerosis

PAN Foundation
805 15th Street, NW, Suite 500, Washington, DC, 20005
Main: (866) 316-7263 Toll Free: (800) 394-0161

Patient Support, Multiple Sclerosis

The Assistance Fund-TAF
8427 Soutpark Circle, Suite 100, Orlando, FL, 32819
Main: (855) 845-3663 Fax: (833) 865-3757

Patient Support, Parkinson's Disease

An organization whose primary mission relates to Parkinson’s Disease patient advocacy, education, or direct support programs to address patient specific needs. These organizations may peripherally participate in other activities like legislative advocacy, but patient support is their focus. Programs that help individuals navigate through the maze of the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution.

Patient Support, Parkinson's Disease

American Parkinson Disease Association
135 Parkinson Avenue, Staten Island, NY, 10305
Main: (800) 223-2732 Toll Free: (800) 223-2732 Fax: (718) 981-4399